The Autoimmune Community Team (ACT): Redefining Research is designed to gather a global pool of patients, industry and researchers to initiate discussions early in the drug discovery environment so that research ideas and dollars spent will better reflect the patient’s needs.  The program enables patients who are usually unable to participate in research discussions due to disease limitations and/or the inability to travel, to contribute through a flexible virtual platform. Program will begin November 2015.

What does ifaa do?

July 2015
IFAA Publishes its year and a half long investigation into the Early Symptoms of Autoimmune Arthritis.    This empirical study collected patient-reported early symptoms of Rheumatoid Arthritis, Psoriatic Arthritis, Systemic Lupus Erythematosus, Sjogren's Syndrome, Ankylosing Spondylitis, and Adult Onset Still's Disease, as experienced in the first 24 months from onset (Early Disease) and cross-referenced the findings with existing symptoms published by the American College of Rheumatology, National Institutes of Health, National Library of Medicine, and Mayo Clinic. 

November 2015
IFAA Awarded $50,000 Grant to Perform Ethics Evaluation into Step Therapy Procedures in the US.   Currently there are no documented patient-led ethical investigations into the process of step therapy and its' effects on patients.  IFAA, in conjunction with step therapy policy experts and bioethicists, is investigating the humanity, or lack thereof, that exists when patients are not getting the proper treatment based on current step therapy treatment standards. The position paper will be published RIGHT HERE following it's presentation at a Congressional Briefing in Washington D.C., November 17th, 2015.

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IFAA continuously analyzes the community, through internal investigations and patient to patient communications, to determine the most pressing issues patients face today.  Then, using our backgrounds in business and education, we work to develop and implement solutions.

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