IFAA Publishes their year and a half long investigation into the Early Symptoms of Autoimmune Arthritis. This empirical study collected patient-reported early symptoms of Rheumatoid Arthritis, Psoriatic Arthritis, Systemic Lupus Erythematosus, Sjogren's Syndrome, Ankylosing Spondylitis, and Adult Onset Still's Disease, as experienced in the first 24 months from onset (Early Disease) and cross-referenced the findings with existing symptoms published by the American College of Rheumatology, National Institutes of Health, National Library of Medicine, and Mayo Clinic. SEE RESULTS
IFAA Awarded $50,000 Grant to Perform Ethics Evaluation into Step Therapy Procedures in the US. Currently there are no documented patient-led ethical investigations into the process of step therapy and its' effects on patients. IFAA, in conjunction with step therapy policy experts and bioethicists, will investigate the humanity, or lack thereof, that occurs when patients are not getting the proper treatment based on current step therapy treatment standards.
March 2015, Washington D.C.
Autoimmune Summit. The National Coalition of Autoimmune Patient Groups (NCAPG), led by AARDA and inclusive of over 30 US based non-profit groups, will lead an Autoimmune Summit for education and awareness in Washington D.C. this coming spring. IFAA CEO, Tiffany Westrich, was invited to open the Congressional Briefing to legislatures prior to Hill visits, in addition to participating on a panel about fatigue and leading a teaching seminar on how to advocate for public policy.
The International Foundation for Autoimmune Arthritis is ranked a Gold Level Participant with GuideStar.
October 27-28 2015, Bethesda, MD
NIAMS Scientific Grant Review Panel . IFAA's CEO, Tiffany Westrich-Robertson, will begin her 3 year term as a grant reviewer for the National Institutes of Health- Arthritis, Musculoskeletal, and Skin division. She is the second patient ever to serve for this committee.
October 29-30 2015, Philadelphia, PA
E-Patient Connections 2015. Co-Founder, Kelly Conway, will participate as a panelist in this eXl Pharma event on "Enhancing ePatient and Life Science Stakeholder Relations to Create Improved Health Outcomes and Therapeutic Engagements"
November 7-11 2015, San Francisco, CA
ACR Scientific Meeting. IFAA will have an exhibitor's booth and feature the Early Symptoms of Autoimmune Arthritis investigation findings at rheumatology’s premier scientific meeting for anyone involved in research or delivery of rheumatologic care or services.
awareness is at the root of all things we do.
from encouraging differentiation in arthritis types to helping the public understand our diseases to policing the media to ensure information is delivered correctly & in a way accepted by patients, we are the patients' voice .
ifAA IS THE OFFICIAL EVENT COORDINATOR & HOST OF WORLD AUTOIMMUNE ARTHRITIS DAY, A VIRTUAL EVENT HELD ONLINE EACH YEAR ON MAY 20TH. iT UNITES OVER SIX DOZEN NONPROFITS & COMMUNITY LEADERS ANNUALLY, SHARING EDUCATION & SPREADING AWARENESS ON A GLOBAL LEVEL.
World Autoimmune Arthritis Day
IFAA continuously analyzes the community, through internal investigations and patient to patient communications, to determine the most pressing issues patients face today. Then we develop and implement solutions to the problems.
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