IFAA continuously analyzes the community, through internal investigations and patient to patient communications, to determine the most pressing issues patients face today. Then we develop and implement solutions to the problems.
World Autoimmune Arthritis Day
ifAA IS THE OFFICIAL EVENT COORDINATOR & HOST OF WORLD AUTOIMMUNE ARTHRITIS DAY, A VIRTUAL EVENT HELD ONLINE EACH YEAR ON MAY 20TH. iT UNITES OVER SIX DOZEN NONPROFITS & COMMUNITY LEADERS ANNUALLY, SHARING EDUCATION & SPREADING AWARENESS ON A GLOBAL LEVEL.
awareness is at the root of all things we do.
from encouraging differentiation in arthritis types to helping the public understand our diseases to policing the media to ensure information is delivered correctly & in a way accepted by patients, we are the patients voice .
May 2015, ONLINE, Global
World Autoimmune Arthritis Day, May 2015. This online, global educational and awareness event unites dozens of nonprofits and community leaders with patients and supporters in a "race around the world" (of websites and social media) to learn more about their resources and raise global awareness about Autoimmune Arthritis diseases. Learn More.
The International Foundation for Autoimmune Arthritis is ranked a Gold Level Participant with GuideStar.
The Role of Investigational New Drugs in Patient Care. IFAA CEO, Tiffany Westrich, was invited to participate in this workshop to explore issues relating to expanded access programs & patient care. She stayed in D.C. for a meeting the following day, as a member of the National Coalition of Autoimmune Patient Groups (NCAPG).
March 2015, Washington D.C.
Autoimmune Summit. The National Coalition of Autoimmune Patient Groups (NCAPG), led by AARDA and inclusive of over 30 US based non-profit groups, will lead an Autoimmune Summit for education and awareness in Washington D.C. this coming spring. IFAA CEO, Tiffany Westrich, was invited to open the Congressional Briefing to legislatures prior to Hill visits, in addition to participating on a panel about fatigue and leading a teaching seminar on how to advocate for public policy.
IFAA Awarded $50,000 Grant to Perform Ethics Evaluation into Step Therapy Procedures in the US. Currently there are no documented patient-led ethical investigations into the process of step therapy and its' effects on patients. IFAA, in conjunction with step therapy policy experts and bioethicists, will investigate the humanity, or lack thereof, that occurs when patient are not getting the proper treatment based on step therapy treatment standards.
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