At the close of this initial phase the IFAA team will report all findings – including results from all qualitative & quantitative research, analysis of successes & failures of having patients in leadership roles, recommended revisions to online patient participation practices, & will suggest frameworks to best engage patient - researcher - industry collaborations in all phases of the R & D environment.
Patients involved (leading & as Hub participants) were diagnosed with Psoriatic Arthritis (PsA), Ankylosing Spondylitis (AS) and/or Axial Spondyloarthropathy (axSpA). However, as the project continues (ACT II) it will expand to also include patients diagnosed with Rheumatoid Arthritis (RA) and/or Systemic Lupus Erythematosus (SLE).
At the close of ACT I the IFAA team will report all findings – including successes & failures of having patients in leadership roles, recommended revisions to retest procedures, & hypothesize how patient inclusion could lead to time & budget savings. It will also conclude ways patients, industry, & researchers visualize productive partnerships & will propose an expansion to test new collaboration models for the early drug development environment ( a focus of ACT) and will expand in 2017 to include Pre-Clinical through Clinical Trial phases, working towards identifying existing gaps where patient input could produce value.
The A Community Team (ACT): Redefining Research project was one of three innovation in research grant winners – and the only immunology winner - in Celgene’s 2015 Innovation Impact Awards. "ACT" aims to develop collaborative strategies between researchers, industry, and patients that can lead to improved treatment outcomes and a better use of research dollars. The initial planning project, which launched in 2016, focused on understanding patient treatment decision drivers, studying existing R & D processes which included:
ACT II expansion will include:
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