IFAA is perhaps most well known for hosting World Autoimmune/Autoinflammatory Arthritis Day, an annual event on May 20th that unites over 3 dozen supporting organizations and advocate groups in an online, virtual event.
Throughout the year, IFAA and our volunteer "Representatives" work with other leaders via coalitions, nonprofits and experts to create the best patient outcomes possible as we continue to identify and solve the most pressing community issues. We believe together we can make the biggest impact. IFAA currently works with over 3 dozen nonprofits/groups/companies, in addition to dozens of patient advocates, to address the most pressing issues in our community.
This structure has earned IFAA and our team members recognition, including Winner of "Best Ensemble Cast"-WEGO Health Activist Awards 2012, Winner for "Community Choice Healthcare Hero"-Pharma eXL West, 2013, Finalist "Healthcare Hero"- WEGO Health Activist Awards 2014, and over a dozen additional nominations based around using the community network to make impact. Learn more about our awards and leadership.
IFAA strongly believes in teaming with other organizations in order to achieve the best results in regards to community issues those affected by these diseases face. We are proud members of the following coalitions:
Friends of National Institute of Dental and Craniofacial Research (FNIDCR), Section member of the American Association for Dental Research (AADR) and International Association of Dental Research (IADR)
Healthcare Leaders for Accountable Innovation in Medicare (AIM)
iBIO PACT: Patent Advocacy, Collaboration and Translation, Advisory Committee and members. The mission is connect local, regional and national organizations by appropriately engaging key stakeholders to advance the shared goal of bringing new treatments to patients more effectively.
The National Coalition of Autoimmune Patient Groups (NCAPG) Hosted by AARDA (American Autoimmune Related Diseases Association). Mission: To consolidate the voice of autoimmune disease patients and to promote increased education, awareness, and research into all aspects of autoimmune diseases through a collaborative approach.
NIAMS Coalition (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Two of IFAA's Founders, Tiffany Westrich & Tami Brown, are honored to serve on the NIAMS Coalition. The Coalition is a group of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).
California Coalition for Chronic Care The CCCC is a unique alliance of more than 30 leading consumer health organizations and provider groups that promote the collaborative work of policy makers, industry leaders, providers, and consumers to improve the health of those with chronic conditions.
Nevada Partnership for Access to Treatment Partnership to help elevate awareness of Nevadans living with chronic conditions and advocate on behalf of patient access to care and treatment.
Medicare Access for Patient Prescriptions (MAPRx) MAPRx is a coalition of patient, family caregiver, and health professional organizations committed to lifeguarding the well-being of patients with chronic diseases and disabilities who rely on Medicare Prescription Drug Coverage.
Protect Medicare Part D Working Group aims to keep our organizations updated on policy developments that could impact patients’ access to medications through Medicare. These working group calls provide a forum for organizations dedicated to patient health to share resources and ideas for advocacy.
Patients for Biologics Safety and Access (PBSA) The PBSF is a national coalition representing more than 20 patient advocacy organizations working to ensure that the voices and interests of patients are heard as the FDA considers approval of a new category of drugs known as biosimilars.
National Institute of Environmental Health Sciences Partners (NIEHS) Working with the Partners allows the NIEHS to learn more about the priorities of these organizations, and helps to shape the institute’s research agenda. In turn, these organizations learn about the NIEHS research enterprise and about the other partner organizations. The Partners are powerful voices for environmental health issues.
Partnership to Fight Chronic Disease Chronic disease is not only the number one driver of health care spending, it presents a significant human and economic threat.
Patient Access for Florida Ultimately, healthcare professionals, not bureaucrats, should make the determination of the best course of treatment and medications for a patient. We need to ensure Florida’s patients are receiving the right medicine at the right time.
World Arthritis Day Ambassador While IFAA hosts World Autoimmune/Autoinflammatory Arthritis Day, we also help EULAR, organizers of World Arthritis Day, to raise awareness about the day and coinciding awareness events surrounding the day
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