IFAA is a 2016 Top-Rated Nonprofit. Review our work HERE
IFAA (pronounced I-F-A-A) is an AWARD-WINNING, global nonprofit focusing on autoimmune and autoinflammatory diseases with arthritis as a major component.
As patients ourselves, we understand the community issues that need to be addressed; as current and former educators, business professionals, and students of research protocol, we understand how to develop and implement solutions.
Whether we are creating ways to get patients more involved in research or launching global awareness and education campaigns, we are constantly finding ways to improve the lives of those affected by these diseases.
"ACT" aims to develop collaborative strategies between researchers, industry, and patients that can lead to improved treatment outcomes and a better use of research dollars. It also explores ways to involve a larger patient population - not only patient advocates. This November we took the conversation between patients, researchers, and industry LIVE and invited the entire patient population to join us. Next, we interview industry to determine their barriers & benefits to patient collaboration and analyze all of the viewpoints. Phase one, or ACT I, will commence in February 2017 when we host on online Round Table between patient groups, researchers, and industry to review project findings and establish a plan of action for 2017 collaborations. Learn more
Patients, what do you want to know about biosimilars? As biosimilars come to market, patients have questions. What are biosimilars? How do they work? Are they the same as my current biologic?
As biosimilars enter the market, we understand you will have questions. Let IFAA help answer them for you! Learn More
Why do we focus on these specific diseases?
There are well over 100 diseases that are autoimmune and/or autoinflammatory, and these diseases often present with symptoms that include fatigue, fevers, brain fog, tissue pain, and a general feeling of being unwell. However, only a couple dozen autoimmune/autoinflammatory diseases also include inflammatory induced arthritis as a major disease component. By bringing focus to this specific subset of diseases, including what is similar and different among them, we will help to expedite early detection, referrals, diagnosis, and proper treatments. Read more
After working with bioethicists, IFAA concluded that insurance companies cite research to justify low cost recommendations, however, only patients who meet a general patient population criteria are used in the clinical trials used as credible research. A patient doctor has an ethical responsibility to treat to the individual uniqueness of a patients' needs, including if they are atypical - or do not present the same as other patients in the general patient population. Therefore, when an insurer forces use of a treatment not shown to be beneficial in atypical patients, and denies a doctors appeal for a better suited treatment, this crosses ethical boundaries. Learn more
World Autoimmune/Autoinflammatory Day 2017 (#WAAD17) is an annual awareness and resource sharing event that unites 1,000's of patients and supporters with dozens of nonprofits, supporting companies, and advocates around the world. The event, held on May 20th in every time zone (so continuously for 47 hours) is hosted in the form of a car race, with nonprofits as the race cars and YOU drive them to victory! Learn more
IFAA (pronounced I-F-A-A) is an International Foundation for Autoimmune & Autoinflammatory diseases with Arthritis as a major component.
The International Foundation for Autoimmune Arthritis is ranked a Gold Level Participant with GuideStar.
Copyright 2017. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. Tax ID: 27-1214308