Questions about Participating in Clinical Trials? Visit the Center for Information & Study on Clinical Research Participation (CISCRP): Education Center

​​Find All the Resources You Need in One Global Event: World Autoimmune​​/Autoinflammatory Arthritis Day (WAAD), May 20th Annually

Have RA but can't find the resource you need?  Maybe the US Arthritis Foundation has it...or the National Rheumatoid Arthritis Society in the UK... or Arthritis New Zealand?  WAAD unites the community so you don't have to search for what you need!  This event not only is a platform to raise global awareness about our diseases, but it boasts 100’s of resources about disease management, research, support, and advocacy.  Over 3 dozen nonprofits & advocacy groups unite to ensure patients, regardless of where they are located in the world, can find the most relevant resources for their disease journey.


Download the WAAD 2016 Program, with over 300 resources globally, HERE*

*Links in the program were provided by nonprofit participants and may no longer work or may have changed since submission. 


#LearnArthritis

Autoimmune/Autoinflammatory versus Degenerative:  It's like comparing apples and oranges

We have several educational links on our #LearnArthritis page that covers this topic.  Check it out!

The HealthWell Foundation.  This group helps patients who have trouble paying out of pocket costs and insurance co-payments.  http://www.healthwellfoundation.org


Medicare Access for Patients Rx.  This organization can answer your questions and provide US residents with state contacts.  IFAA is an official member of the MAPRx.   http://maprx.org

treatment assistance

​​Don't Let Misinformation about Autoimmune/Autoinflammatory Arthritis Go Unreported

Submit misinformation from articles, advertisements, broadcasts - anywhere you find false or misleading information about Autoimmune/Autoinflammatory Arthritis and we'll see if we can get it revised. Report HERE


other resources

How to Stop Spreading Misinformation

In a media-frenzied world, it's often easy to find information about your disease.  But how can you tell if it's credible or scientifically reliable?  Here's a piece written by IFAA's CEO called "I heard unicorns can cause Rheumatoid Arthritis", which outlines some tips to help make sure you are getting and sharing the best resources!  Check out the article, originally published at RheumatoidArthritis.com.


official blog of the ifaa Coming soon

​Upon inception in 2011, IFAA adopted a 'global network' philosophy, using relationship building and collaborations in all we do.  And now we are bringing our experiences - and relationships - to you.​​ 

  • Follow us to conventions, then report back to you what we learned and if there is anything YOU can get involved with that you may otherwise never know about.
  • Since 2012 IFAA has hosted the largest, collaborative event for our diseases in the world - 
    ​World Autoimmune/Autoinflammatory Arthritis Day (WAAD) every May 20th.  By doing this, we have established 100s of relationships with community leaders, researchers, doctors, and more.  We will being inviting these contacts to be interviewed so YOU can ask questions and get the answers you need.
  • We are patients.  We get it.  A large percentage of this blog will be about being a patient and addressing issues we face - then offering tips, resources, and suggestions for solving those problems.

Who Am I Now?  Living with Unexpected Disability. VIDEO PRESENTATION *Note: this video says "IAAM", the former name of the IFAA

Access to Treatments

NeedyMeds.  Provides sources for assistance programs for patients having difficulty paying for medication. http://www.NeedyMeds.org


Chronic Disease Fund. Provides assistance for the under insured.    http://www.cdfund.org

Sign up for IFAA's Future Investigations & Studies. We are leaders in patient engagement in research.  Learn more how you can get involved.

resources

What Do I Need to Know ​​About Biosimilars?

Join IFAA CEO and patient, Tiffany Westrich-Robertson, as she and a medical professional help guide you through a question and answer session about biosimilars. The project through ProPatient was funded for Rheumatoid Arthritis education, but this is relevant for any patient who has questions about biosimilars.View Modules


Who Am I Now?  Living with Unexpected Inability to Do What You Used to Do

Need help explaining to supporters what it feels like to have the Autoimmune/Autoinflammatory type of Arthritis?  Download this one-sheet and share to help them better relate by using examples they understand.

Awareness, Education, & support

Understanding the Differences & Similarities of Autoimmune and Autoinflammatory

Both stem from the immune system, just different parts.  ​Is your disease autoimmune?  Autoinflammatory?  Or a combination of both?  Learn more

If you are have a prescription and need financial assistance, go to the website of the medication manufacturer and search for their Assistance Programs.  Most of these companies have ways to help which may cost you $0.

participate in research

Explaining Your Disease to Those Who Don't Understand

Need help explaining to supporters what it feels like to have the Autoimmune/Autoinflammatory type of Arthritis?  Download this one-sheet and share to help them better relate by using examples they understand.


What Does Autoimmune/Autoinflammatory Arthritis Feel Like?  PDF DOCUMENT