We utilize a "Global Network" approach on every project by enlisting the help of fellow patient advocates, nonprofits, advisors, and subcontracted experts. This enables us to put together the best team for each initiative we take on.
Coalitions. IFAA believes in collaboration. We currently participate in over a dozen coalitions, working with other organizations worldwide to ensure we can take action on issues that are important those affected by these diseases. Learn more about our coalition work.
Like all nonprofits, we are governed by aBoard of Directors. We keep this volunteer Board small (under 8) in order to streamline our productivity. We select members for the Board that bring a specific expert skill to the organization (project management, education, marketing, etc).
What does IFAA do? Unique to IFAA is our foundation model. We were founded by patients who have professional experience in business, education, and research. So we use our role as patients to communicate with other patients in our community to identify the most pressing issues that need to be solved, then our own backgrounds to consider solutions. Once the project has funding to move forward, we reach out to our "Global Network" of resources - which includes other nonprofits, patient advocates, professional experts, and our own IFAA volunteers - to establish the best TEAM and then, together, we develop and implement solutions.
Like other nonprofits, we do overall work in awareness, education, and advocacy, but we are strongly project-based and have a major focus utilizing patients to streamline research and to bridge that research to influence public policy. We are changing the landscape of healthcare and leading the way for 'next generation nonprofits'.
IFAA Representatives with Dr. Richard Seigel & Dr. John O'Shea, Directors at the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and the National Institutes of Health (NIH) team.
IFAA WORKS TO SOLVE COMMUNITY ISSUES FOR THOSE AFFECTED BY AUTOIMMUNE AND AUTOINFLAMMATORY DISEASES WHERE ARTHRITIS IS A MAJOR COMPONENT.
The purpose of establishing IFAA was based on the realization, through patient-to-patient communications globally, that a small group of autoimmune diseases (and now some that are considered autoinflammatory diseases) that presented with similar symptoms, regardless of diagnosis. These included joint pain (arthritis), fatigue, fevers of various levels, brain fog, severe stiffness after rest.
Volunteers and Public Input. Patients are at the core of all brainstorming, program development, and project implementation. In addition to continuous engagement and assessment of the patient population, we have two levels of volunteers who are key participants and partners.
We work simply and effectively. Our 'core team' includes the CEO, Co-Founders, Employees (under 5 at all times), and two levels of volunteers:
Representatives are volunteers who have been with IFAA for a minimum of 3 months & who dedicate significant time to helping create & run our programs.
Partners are volunteers who support the nonprofit by helping on projects, sharing programs, and fundraising.
Most of our initiatives include the voice of the patient population, in addition to the opinions of our core team. So from the CEO to volunteers to the public, we involve the patient at every level!
Click on Co-Founder photos for links to current CVs
IFAA became an official nonprofit in 2011, but it originated as an awareness movement stemming from a charity bracelet designed with the same beading pattern. This pattern symbolized all people (3 silver, 3 black) working together to create strength (large red) and uniting as a community for change (single, darker silver). We adopted this for our foundation logo and changed it to a molecular structure, honoring how it all began.
Headquarters. IFAA's CEO resides in St. Louis, MO, where we participate in a co-working space - Industrious. This enables us to use conference rooms & event spaces as needed.
Virtual Officing. When IFAA's founders developed the working structure, they took into account that the patients working for & volunteering services for IFAA would require extreme flexibility to accommodate disease activity & flares - including the opportunity to 'work' when they feel best. Therefore, IFAA is open 24 hours a day, 7 days a week so those involved can participate when they feel best, and in turn, promotes heightened productivity. We have helpers located all over the world who collaborate using online technologies.
Fun Fact: About the Logo
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