After 6 years going to conventions, attending meetings, participating in coalitions, being research grant reviewers and more - we have been the patients "at the table" and now we are ready to share all of our knowledge and experiences with YOU!

Sign up for Systemically Connected, IFAA's new blog where not only we will help you learn more about things relevant to your disease journey, but ALL OF YOUR COMMENTS WILL BE RECORDED AND USED FOR RESEARCH AND/OR FUTURE PROGRAM DEVELOPMENT. That's right, IFAA is 100% patient driven, and that includes YOU driving us!

So check it out, sign up for notifications, and take your seat at the table!

Go to to view our blog.