IFAA strongly believes in teaming with other organizations in order to achieve the best results in regards to community issues those affected by these diseases face. We are proud members of the following coalitions:
Friends of National Institute of Dental and Craniofacial Research (FNIDCR), Section member of the American Association for Dental Research (AADR) and International Association of Dental Research (IADR)
Healthcare Leaders for Accountable Innovation in Medicare (AIM) Advocating for healthcare innovation that benefits patients, providers, and the American public
Patient Protections Working Group: Coalition of stakeholders in the United States who unite on legislative efforts that protect patient access to treatments. Led by U. S. Pain Foundation.
The National Coalition of Autoimmune Patient Groups (NCAPG) Hosted by AARDA (American Autoimmune Related Diseases Association). Mission: To consolidate the voice of autoimmune disease patients and to promote increased education, awareness, and research into all aspects of autoimmune diseases through a collaborative approach.
NIAMS Coalition (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Two of IFAA's Founders, Tiffany Westrich & Tami Brown, are honored to serve on the NIAMS Coalition. The Coalition is a group of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).
California Coalition for Chronic Care The CCCC is a unique alliance of more than 30 leading consumer health organizations and provider groups that promote the collaborative work of policy makers, industry leaders, providers, and consumers to improve the health of those with chronic conditions.
Nevada Partnership for Access to Treatment Partnership to help elevate awareness of Nevadans living with chronic conditions and advocate on behalf of patient access to care and treatment.
Medicare Access for Patient Prescriptions (MAPRx) MAPRx is a coalition of patient, family caregiver, and health professional organizations committed to lifeguarding the well-being of patients with chronic diseases and disabilities who rely on Medicare Prescription Drug Coverage.
Protect Medicare Part D Working Group aims to keep our organizations updated on policy developments that could impact patients’ access to medications through Medicare. These working group calls provide a forum for organizations dedicated to patient health to share resources and ideas for advocacy.
Patients for Biologics Safety and Access (PBSA) The PBSF is a national coalition representing more than 20 patient advocacy organizations working to ensure that the voices and interests of patients are heard as the FDA considers approval of a new category of drugs known as biosimilars.
National Institute of Environmental Health Sciences Partners (NIEHS) Working with the Partners allows the NIEHS to learn more about the priorities of these organizations, and helps to shape the institute’s research agenda. In turn, these organizations learn about the NIEHS research enterprise and about the other partner organizations. The Partners are powerful voices for environmental health issues.
Partnership to Fight Chronic Disease Chronic disease is not only the number one driver of health care spending, it presents a significant human and economic threat.
Patient Access for Florida Ultimately, healthcare professionals, not bureaucrats, should make the determination of the best course of treatment and medications for a patient. We need to ensure Florida’s patients are receiving the right medicine at the right time.
Kansas Coalition for Treatment Access
World Arthritis Day Ambassador While IFAA hosts World Autoimmune/Autoinflammatory Arthritis Day, we also help EULAR, organizers of World Arthritis Day, to raise awareness about the day and coinciding awareness events surrounding the day.
Copyright 2017. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. Tax ID: 27-1214308