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We use our own disease understanding as patients, in addition to advice from volunteers and the disease community, to help us identify the most pressing issues that need to be solved. Once we develop a project and raise the funding necessary to address the problem, we enlist the help of other patient advocates, nonprofits, advisors, and subcontractors (called the Global Networkphilosophy) to create the best team to implement solutions.
Since many organization worldwide, and hundreds on social media outlets, already provide support for patients living with autoimmune and autoinflammatory diseases with arthritis as a major component, we do not host our own support groups. However, we understand the value of support and, therefore, we are always available via social media or at firstname.lastname@example.org to help patients with support-related issues. Additional resources to help others understand the limitations associated with these diseases can be found here.
IFAA strongly believes in teaming with other organizations in order to achieve the best results in regards to community issues those affected by these diseases face. We are proud members of over a dozen Coalitions. View the list of Coalitions
IFAA is not like any other nonprofit. We are patients who use our background experience in business development, project management, education, and research to identify and solve community problems. In each project we take on we join forces with other community leaders, nonprofits, advisors, and subcontractors to ensure we produce the best outcomes possible. From the way we have created our unique organizational model that puts the patient at the heart of all we do to implementing projects that are changing the landscape of healthcare, we are leading the way for 'next generation nonprofits'.
At the core of IFAA is the underlying need for more awareness. With more awareness about Autoimmune/AutoInflammatory Arthritis and associated diseases, including better public and supporter understanding of the symptoms and overall progression and limitations of the diseases associated with, the following is possible:
Patients face issues in healthcare such as having access to treatments and ensuring there is adequate funding for disease research. IFAA is a major contributor to bringing the patient voice to the front lines. From attending Capitol Hill fly-ins, such as with the American College of Rheumatology, National Coalition of Autoimmune Patient Groups, or Friends of the National Institute of Dental & Craniofacial Research (FNIDCR), to sitting on coalitions, we have our finger on the pulse of advocacy efforts around the world. Our major areas of focus include:
While many organizations fund research, IFAA aims to be part of the research team. Current trends in research do include involvement of the patient to some degree and IFAA is in the center of all efforts. From designing our own patient-inspired projects, to assisting industry and researchers with design and dissemination, we are a go to nonprofit for anything "patient-centered" in research.
In addition to specific projects, IFAA works on several initiatives in the following areas:
Copyright 2017. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. Tax ID: 27-1214308