Explaining Your Disease to Those Who Don't Understand

Need help explaining to supporters what it feels like to have the Autoimmune/Autoinflammatory type of Arthritis?  Download this one-sheet and share to help them better relate by using examples they understand.


What Does Autoimmune/Autoinflammatory Arthritis Feel Like?  PDF DOCUMENT

resources

treatment assistance

Questions about Participating in Clinical Trials? Visit the Center for Information & Study on Clinical Research Participation (CISCRP): Education Center

Don't Let Misinformation about Autoimmune/Autoinflammatory Arthritis Go Unreported

Submit misinformation from articles, advertisements, broadcasts - anywhere you find false or misleading information about Autoimmune/Autoinflammatory Arthritis and we'll see if we can get it revised. Report HERE


IFAA advocates for a small group of autoimmune and autoinflammatory diseases with inflammatory arthritis as a major component.  Since we work with other nonprofits from all over the world (which we call our Global Network philosophy), we do not replicate resources (and thus waste valuable organization dollars) by reproducing what has already been done and done well.  Therefore, instead of creating disease-specific literature that provides an overview of each disease we focus on at IFAA, we connect you with those resources that have already been published by our friends at other organizations. 


To see a list of autoimmune and autoinflammatory diseases with arthritis as a major component, and links to find the best general education about those diseases. visit our Autoimmune/Autoinflammatory Arthritis overview page. 

Who Am I Now?  Living with Unexpected Inability to Do What You Used to Do

Need help explaining to supporters what it feels like to have the Autoimmune/Autoinflammatory type of Arthritis?  Download this one-sheet and share to help them better relate by using examples they understand.

Understanding the Differences & Similarities of Autoimmune and Autoinflammatory

Both stem from the immune system, just different parts.  ​Is your disease autoimmune?  Autoinflammatory?  Or a combination of both?  Learn more

#LearnArthritis

Autoimmune/Autoinflammatory versus Degenerative:  It's like comparing apples and oranges

We have several educational links on our #LearnArthritis page that covers this topic.  Check it out!

participate in research

Access to Treatments

NeedyMeds.  Provides sources for assistance programs for patients having difficulty paying for medication. http://www.NeedyMeds.org


Chronic Disease Fund. Provides assistance for the under insured.    http://www.cdfund.org

The HealthWell Foundation.  This group helps patients who have trouble paying out of pocket costs and insurance co-payments.  http://www.healthwellfoundation.org


Medicare Access for Patients Rx.  This organization can answer your questions and provide US residents with state contacts.  IFAA is an official member of the MAPRx.   http://maprx.org

Sign up for IFAA's Future Investigations & Studies. We are leaders in patient engagement in research.  Learn more how you can get involved.

How to Stop Spreading Misinformation

In a media-frenzied world, it's often easy to find information about your disease.  But how can you tell if it's credible or scientifically reliable?  Here's a piece written by IFAA's CEO called "I heard unicorns can cause Rheumatoid Arthritis", which outlines some tips to help make sure you are getting and sharing the best resources!  Check out the article, originally published at RheumatoidArthritis.com.


What Do I Need to Know ​​About Biosimilars?

Join IFAA CEO and patient, Tiffany Westrich-Robertson, as she and a medical professional help guide you through a question and answer session about biosimilars. The project through ProPatient was funded for Rheumatoid Arthritis education, but this is relevant for any patient who has questions about biosimilars.View Modules


Awareness, Education, & support

Early Symptoms

In 2014, IFAA worked with the Spondylitis Association of America, Sjogren's Syndrome Foundation, Lupus UK, and International Still's Disease Foundation to better understand patient-reported early symptoms (0 < 24 months from onset)  compared to symptoms reported in major publications. 

See the results and compare your early symptoms to those found in our report. 

Who Am I Now?  Living with Unexpected Disability. VIDEO PRESENTATION *Note: this video says "IAAM", the former name of the IFAA

If you are have a prescription and need financial assistance, go to the website of the medication manufacturer and search for their Assistance Programs.  Most of these companies have ways to help which may cost you $0.